Some Days Are Harder Than Others

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Some days are truly harder than others. Yesterday I held Lyra for a good portion of the day. She was cuddly and sleepy and it was nice to have that time with her while we waited for surgery. This morning is tough though. Lyra is on the same size bed I slept on in the hospital, but she is only 7 pounds. Her tiny little body is almost hard to spot since the sheets are white and she is wrapped up in white blankets with white tape covering most of her exposed face. I can’t pick her up and I am not even sure how much I can touch her.

Surgery yesterday went well. They were able to trim the extra tissue and open her airway up. However, she did need help with her breathing during and after the procedure. This morning she is still on a ventilator. That is the reason there are so many monitors hooked up to her and why I can’t hold her. During surgery they also identified an additional abnormality that may be impacting her breathing. Today she is likely having an MRI to try to determine what is causing the problem. For now, I will just sit in the rocking chair watch the monitors.

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2 responses »

  1. Hey Jamie and Mark, I wish I knew what to say to you guys right now. Just know that you and Lyra are in my thoughts. You are amazing parents and you have a very strong little one!

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  2. Jamie and Mark. I am Jaci’s mom. She shared this with me. I am praying for the both of you and for Lyra. Please know that you are not alone even though at times you may feel like you are. Hold on to each other and yes cry. Allow yourself to take a break to be able to stay healthy yourself. Read and sing to Lyra. Love all over her whenever you are able. Peace for all of you.

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